First- of-its-kind research network seeks to inform standards, policy and reimbursement strategies as telehealth adoption increases throughout the U.S.
CHARLESTON, S.C. (April 16, 2019) –The Medical University of South Carolina (MUSC) has received a $3.6 million primary award for the SPROUT-CTSA Collaborative Telehealth Research Network. This five-year grant is focused on supporting the development of telehealth research efforts, metric development, identification of best practices and the development of collaborative policy and advocacy materials across the country. It builds on work underway as part of the SPROUT (Supporting Pediatric Research on Outcomes and Utilization of Telehealth) collaborative, an established network of institutions and pediatric providers operating within the American Academy of Pediatrics, which is a sub awardee of the grant. The other sub-awarded institutions are the University of Colorado – Children’s Hospital Colorado, Children’s Hospital of Philadelphia (CHOP), and Mercy Clinic in St. Louis, Missouri.
“This is a huge step forward in the development of safe and impactful telehealth programs across the country,” said primary investigator for the grant S. David McSwain, M.D., MUSC Children’s Health physician and MUSC associate professor of pediatric critical care and chief medical information officer. “Academic research into the real impact of telehealth services is a critical component of developing and growing programs with the greatest potential to improve our health care system. Many physicians and other health care providers are hesitant about incorporating telehealth into their practices because it’s difficult to separate the theoretical benefits from the real value.”
In 2015, McSwain collaborated with a small group of pediatric physicians across the country to form SPROUT, which has since completed and published the nation’s first broad assessment of pediatric telehealth infrastructure across the country.
“That was a critical starting point,” said John Chuo, M.D., associate professor of clinical pediatrics at CHOP, co-chair of SPROUT and site primary investigator. “When we started SPROUT, we realized that we couldn’t conduct studies on pediatric telehealth unless we actually knew which institutions were providing which types of services. That information wasn’t readily available, so we made it our first investigation.”
While much anecdotal or small-scale evidence exists about the benefits of telehealth, including cost reduction, improved quality of care in some patient populations and improved access to care for some rural and underserved populations, barriers to fully demonstrating the gains made via telehealth care delivery persist. For example, there are few best practices in existence for conducting multisite telehealth research involving patient care outcomes, limited access to research trials for rural populations and limitations to care access for special populations such as children or the elderly.
“At the national level, there is no academic authority currently spearheading multicenter telehealth research studies,” said Christina Olson, M.D., assistant professor of pediatrics and site primary investigator at the University of Colorado – Children’s Hospital Colorado. “We have piecemeal efforts happening in terms of research, national policy development and payer guidelines. This network will provide tools, resources and guidance to accelerate the development of telehealth studies across the country. We will support champions of telehealth to become champions of research as well.”
The grant is a Collaborative Innovation award through the National Center for the Advancement of Translational Science (NCATS). The program will operate in collaboration with CTSA (Clinical and Translational Science Award) sites across the country to facilitate research development and support current and future telehealth researchers to develop projects and apply for funding. As opposed to supporting a specific clinical research study, this grant seeks to establish an easily accessible support structure around telehealth research: tools, resources, guidance, collaboration, education and advocacy materials that will be valuable to anyone across the country who wants to study telehealth programs.
“We expect this network to become the preeminent source for evidence-based policy and outcomes data,” said Brooke Yeager McSwain, M.Sc., R.R.T, health policy consultant for the project and manager of the South Carolina Children’s Telehealth Collaborative. “Our national and state legislators have seen the benefits of telehealth for certain populations and regions. We have to demonstrate to them that this works across the country and has the potential to dramatically impact health care delivery models, particularly in value-based care.”
Alison Curfman, M.D., medical director of pediatrics at Mercy Virtual and a co-investigator of the grant, spends much of her time thinking about better ways to partner with children and their families for overall better health. “We have to ensure that children have access to every type of care that they need at the right time, no matter where they live. The technology is here. The commitment of the early-adopters is here. Our next frontier is proving to other pediatric providers across the health care spectrum that telehealth is about so much more than convenience.”
About MUSC Children’s Health
At MUSC Children’s Health, we are imagining what’s possible for each and every child by providing the pediatric expertise your child deserves and needs. From promoting healthy lifestyles to offering life-saving treatments, we deliver comprehensive and compassionate care to children throughout South Carolina and beyond. Our integrated health care system consists of a 186-bed pediatric hospital, providing the most advanced care possible in more than 26 specialty areas. We also provide the same depth and breadth of expertise in multiple neighborhood locations throughout the Lowcountry, offering primary, urgent and specialty care. As a Level 1 trauma center, our pediatric emergency department specializes in providing emergency care for any serious injury or illness your child may experience at home, at school or at play. Working collaboratively with pediatricians throughout the community, MUSC Children’s Health also provides after-hours care to children from birth to seventeen years of age in three different locations on weeknights, weekends and holidays. In addition to the clinical care MUSC Children’s Health provides, we are a major pediatric clinical research center conducting significant and ongoing research efforts through the Charles P. Darby Research Institute. This involvement allows us to enhance our ability to provide the highest level of care to children by translating laboratory advances to bedside, developing new technologies and providing clinical trials.